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Support Groups Meeting in Virginia

Please contact PEATC with information about support groups in your area so that they may be included in this list.


 Parent Support Groups


ADD/ADHD

Autism/PDD

Brain Injury

Cerebral Palsy

Chromosomal Syndromes

Chronic Longterm Illness

Down Syndrome

Early Intervention

Emotional Disabilities

Epilepsy

General

Learning Disabilities

Prader-Willi Syndrome

Preschoolers

Tourette Syndrome

ADD/ADHD

HAAD - Hyperactive Attention Deficit Roanoke Valley CH.ADD.
CH.A.D.D. Small Parent Support Groups
Meetings for those concerned with children - 2nd Thursday 7 p.m. in the Education Center behind Lewis Gale Pavilion. Adult meeting 3rd Wednesday 7 p.m. Conference Room B, Lewis Gale Pavilion.
For information contact 366-3024.
Phone: 804-366-3024

Autism/PDD

AS IS Group, Arlington, VA
The Asperger Syndrome Information and Support group helps families with children (ages 3-23) who have Asperger syndrome, high functioning autism, non-verbal learning disabilities, PDD-NOS (pervasive developmental delay - not otherwise specified) and other related social communication skills disabilities. We generally meet on a monthly basis during the school year, alternating daytime and evening meetings. We discuss issues of common interest, exchange information on resources and strategies that have helped our children, and try to support each other and create community support for our families. We also have an active listserve for exchanging information. Meetings are usually held in Arlington. Parents, grandparents, caregivers are all welcome to attend our meetings. While the majority of our families reside in Arlington, we do have members from close-in Fairfax County communities. For more information on the AS IS group, please contact Lucia Claster at aclaster@aol.com or 703-276-0748.
Phone: 703-276-0748
aclaster@aol.com
Autism Society of America, Central Virginia Chapter
Asperger's/High-Functioning Autism Parent Support Groups
Meetings held every 3rd Friday of the month, 6:30 - 9:00 p.m
River Road United Methodist Church, 8800 River Road, Richmond. For information call (804) 257-0192 or bradhul@aol.com.
Phone: 804-257-0192
bradhul@aol.com
Fredericksburg Area
Asperger's/High-Functioning Autism Parent Support Groups
Meetings held the 1st Friday of each month, 7:00 - 9:00 p.m.
Christ Lutheran Church, Augustine Avenue, Fredericksburg. Child care provided with 2 days advanced notice. For information call Kim Lett, (540) 720-0068, asafredericksburg@yahoo.com.
Phone: 540-720-0068
asafredericksburg@yahoo.com
Kingstowne & Fairfax area (open to all parents)
Asperger's/High-Functioning Autism Parent Support Groups
3rd Wednesdays during school months, 7:30 - 9:00 p.m. Call Barry Loss 703-866-2121. bloss@erols.com
Phone: 703-866-2121
bloss@erols.com
National Capital area
Asperger's/High-Functioning Autism Parent Support Groups
2nd Tuesdays. Call Pam Escobar 703-430-3519 aspergers_nca@hotmail.com
Phone: 703-430-3519
aspergers_nca@hotmail.com
Parents Of Autistic Children of Northern Virginia (POAC-NoVA)
Parents Of Autistic Children of Northern Virginia (POAC-NoVA) and its predecessor organization has worked since 1996 to improve the quality and quantity of education for students with autism within the Fairfax County Public Schools (FCPS).
POAC-NoVA approved the following goals for the organization at the July 2006 meeting of the Board of Directors:

1. Serve as a clearinghouse for research-based methodologies for instructing students on the autism spectrum
2. Training public and private school educators and parents in ABA/VB and other research-based instructional methodologies
3. Advocate for and influence the successful implementation of ABA/VB and other research-based instructional methodologies for students on the autism spectrum in Fairfax County Public Schools
4. Advocate for improvements in the services delivered to FCPS students on the autism spectrum

More informations can be found at www.poac-nova.org/ .

Brain Injury

Blue Ridge - Fauquier, Flint Hill, Front Royal & Surrounding areas
Served through Winchester Rehabilation 333 W. Court St., 2nd floor conference room, Winchester. Meets 3rd Thursday, 3:00 - 5:00pm, Sept-May
Central VA
Meets 1st Thursday 7:00 p.m. VA Baptist Hospital, Lynchburg. Contact Betty Zaring (804) 947-4646.
Phone: 804-947-4646
Danville
Meets 2nd Thursday 7:00 p.m. Mt. Herman Baptist Church. Contact Sue Jones (804)724-7070 or Marie Fitzgerald, (804) 836-2198.
Phone: 804-724-7070 or 804-836-2198
Eastern Shore
Contact Margaret Young (757) 787-3131.
Phone: 757-787-3131
Fredericksburg
Meets 3rd Thursday 7:00 p.m. Mary Washington Hospital. Contact Jo Ann Nagle (540) 898-0002 or Jeannie McDowell (540) 374-5051.
Phone: 540-898-0002 or 540-374-5051
Loudoun
Meets 2nd & 4th Tuesday 7:00 - 9:00 p.m. 521-D East Market St.,Leesburg. Contact Fred Caravaglia (540) 554-8839 or Laura Gutrick 703-318-0425.
Phone: 540-554-8839 or 703-318-0425
Manassas
Meets 1st & 3rd Thursday 7:30 p.m. Falls Church High School in Career room. Contact Cheryl Sweeney 703-569-1855.
Phone: 703-569-1855
Northern Va
Helpline for brain injury and strokes 703-569-1855 or nvbia.org for other support groups.
Phone: 703-569-1855
Richmond
Meets Wednesday 7:00 p.m. Sheltering Arms Rehabilitation Hospital, 1311 Palmyra Ave. Contact Thomas Byrnes (804) 359-0401.
Phone: 804-359-0401
Roanoke
Meets 1st & 3rd Thursday 7:00 p.m. Contact Barbara Iddings for details (540) 362-4387.
Phone: 540-362-4387
Shenandoah/Charlottesville
Meets 3rd Thursday 6:00 p.m. Country Buffet, N29. Contact Roberta Jordan (804) 589-4777.
Phone: 804-589-4777
Southeast/Newport News
Meets Wednesdays 6:00 p.m. 1st floor Riverside Rehabilitation Institute, Newport News. Contact Shelley Brown (757) 928-8440 or Jan Brown (757) 564-3149.
Phone: 757-928-8440 or 757-564-3149
Southside - Farmville & Crewe Areas
Contact Rev. Clyde Shelton (804) 767-2259 or fax to same number.
Phone: 804-767-2259
Virginia Beach
Contact Jennifer Hoffman (757) 873-1569.
Phone: 757-873-1569
Winchester- Blue Ridge, Fauquier, Flint Hill, Front Royal & Surrounding Areas
Meets 3rd Thursday Sept.-May, 3:00 - 5:00 p.m. Winchester Rehabilitation, 333 W. Court St. 2nd floor conference room. Contact Leanna Price (540) 665-5183.
Phone: 540-665-5183

Cerebral Palsy

Parents of Children with Cerebral Palsy
Provides a support network for parents of children with Cerebral Palsy. The List Serve is open to all parents of children with CP who reside in Maryland, Virginia, West Virginia and DC. Monthly gatherings will be open to anyone willing to travel to Northern Virginia or Northern Shenandoah Valley. To join group go to http://groups.yahoo.com/group/CPPARENTSVA/. To join list serve only send email to CPPARENTSVA-subscribe@yahoogroups.com with subscribe in the subject line.

For more information contact Melissa Miller at 540-868-0352 (evenings) or email mmiller@infe.org.
Phone: 540-868-0352
mmiller@infe.org

Chromosomal Syndromes

DiGeorge/VCFS Syndromes (chromosome 22 deletions)
Informal support group with social & educational meetings. For more information contact Rebecca Draznin 703-754-1652 or rdraznin@advanceconcepts.com
Phone: 703-754-1652
rdraznin@advanceconcepts.com

Chronic Longterm Illness

Luray & Page Co.
Meets 1st & 3rd Friday 2:00 - 4:00 p.m. in Day room at Page Memorial Hospital. Contact Beulah Peele (540)743-4561. For Diabetic assistance, contact Melanie Moses Stanley.
Phone: 540-743-4561

Down Syndrome

Charlottesville
Monthly Pizza Night for families of Children with Down Syndrome and other disabilities. Meetings are on the 2nd Friday of the month in a church social hall. Contact Emily Dreyfus (804) 977-0432.
Phone: 804-977-0432
Down Syndrome Association of Fredericksburg
DSAFred is a newly established support group that includes parents, family members, friends and professionals working together to improve the quality of life of persons with Down Syndrome. Our children are beautiful and are very important members of our families and community. We are proud of them and we share this pride with all who join with us. Our mission is to enhance the lives of individuals with Down Syndrome and help them reach their full potential by providing family support, education, and social opportunities in Fredericksburg, VA and surrounding areas.

DSAR - Down Syndrome Association of Roanoke (serving Southwest Virginia)
P.O. Box 4683; Roanoke, VA 24015; Contact (540) 772-6460 or visit www.dsar.org .
Phone: 540-772-6460
Parents with K.I.D.S. (Knowledge & Information on Down Syndrome) Prince William County
Please join us for monthly meetings and family get-togethers. Meetings are held on the 2nd Wednesday of the month, from 7-9 p.m. Childcare and sign language or Spanish interpreter services are available, if request is made a week in advance of the meeting. To arrange for childcare or interpreter services, contact the Parent Resource Center, Special Education Dept., Prince William County Public Schools at (703) 791-8846 (Voice), (703) 791-8847 (TDD). For further details regarding meetings, contact co-facilitators Erin Jones at (703) 730-7424 or Heide Thorpe at (703) 492-7068.
Phone: 703-730-7424 or 703-492-7068

Early Intervention

Northern Virginia - Fairfax County Health Dept. at Belle Willard
Contact Kathleen Gillum 703-246-7121
Phone: 703-246-7121

Emotional Disabilities

ED - Emotional or Behavioral Disabilities
ED - Emotional or Behavioral Disabilities

Select the link below for information on signing up for, and participating in, an email-based support group for parents and guardians of children with "Emotional Disabilities" living in Fairfax County.

http://yahoogroups.com/group/edfairfax

Epilepsy

Northern Virginia
Parents of Children with Seizure Disorders
Usually meeting 1st Thursday 7:30 p.m.
Contact Alice Harrington harringtona.hehs@gao.gov or 703-533-5581 or (202) 512-7055
Phone: 703-533-5581 or 202-512-7055
harringtona.hehs@gao.gov

General

Arc of Prince William
Mothers, Fathers & sibling support groups meet on the 3rd Monday of the month from 7:00 - 9 p.m. If holiday, meeting is on 4th Monday. Childcare is available during the meetings for younger children and the child with a disability. For more information & workshops, contact Jan Russell
Phone: 703-730-3124
russellj@erols.com
Arlington Area Group
Parent Information and Support Groups for Parents of Children with Special Needs. Both are drop in at 7:30 pm. GROUP 1--Meets the first Tuesday of Every Month at Common Grounds Cafe at 3211 Wilson Blvd. (across from the Silver Diner. Targeted for families in Arlington with children birth-3 with any type of special needs (surrounding communities welcome). Join us in a comfortable living room setting for topic discussions that range from dealing with the emotions of having a child that has special needs to educating yourself about therapies, IEPs, and the social and emotional development of your child. GROUP 2 -Meets the third Thursday of each month at the Clarendon Fresh Fields in the mezzanine level conference room. Targeted for families living in Arlington with children 12 and under (surrounding communities welcome). Meetings feature either speakers (ranging from therapists, psychologists, educators and advocates) to open discussions on the materials presented by the speakers. Contact your Arlington parent-to-parent coordinator, Julie Katz
Phone: 703-549-0259
julesk@erols.com
Parent to Parent
Meets 2nd & 4th Sundays 9:25 a.m. For parents of children and young adults with special needs. McLean Bible Church, Room 202A, McLean. For information call Jack or Ann Garhart
Phone: 703-242-1944
Parents Like Us in the Tri-Cities Area
Meets 1st Thursday 7:00 - 8:30 p.m. For parents of children with special needs. For more information please contact Stacia Lee
Phone: 804-863-0446
STACIATIM@prodigy.net
Special Needs G.I.F.T.S. (Getting Involved with Families, Teachers, and Schools)
A support network for parents, teachers, and other professionals who are involved with children or young adults who have special needs or learning difficulties. Meets on the first Monday of each month (except in January 2001 when the meeting will be held on the second Monday, January 8). Meetings held in Richmond. Child care available. For more information call Lisa Mansini at (804) 560-7172 or Beverly Smeltzer at (804) 330-2507.
Phone: 804-560-7172
Special Needs Parent Support Group
Meets on the third Tuesday of each month, 7:30 at the PRC. Caring for a child with special needs stirs up powerful feelings in parents. Wouldn’t it be great to take a break from your busy schedule to be with people who understand what you’re going though? Join psychotherapist Alexandra Roth, LCSW, ACSW, and other parents of children with special needs and for this FREE, drop in support group every month. No commitment or need to register. We’re here for you. For information about the group, call Alexandra Roth
Phone: 703-883-0330
Youth Group for people ages 14 - 22 with disabilities
sponsored by the Endependence Center of Northern Virginia, 3100 Clarendon Blvd. Arlington. 22201. For more information contact 703-525-3268 or 703-525-3553 TTY.
Phone: 703-525-3268

Learning Disabilities

Parents of students with learning disabilities
Fairfax/Falls Church parents. For more information contact Karen Todaro 703-644-5810 or todarok@ncr.disa.mil.
Phone: 703-644-5810
todarok@ncr.disa.mil

Prader-Willi Syndrome

National Prader-Willi Syndrome Association (USA)
The PWSUSA website, http://www.pwsausa.org, has general and specific information about Prader-Willi Syndrome. The local chapter of the Association is at http://www.pwsausa.org/MD. For more information contact Linda Keder at 301-384-4955.
Phone: 301-384-4955

Preschoolers

Parents of Preschoolers in Special Education, Alexandria Parent Resource Center
Jefferson-Houston School, 1501 Cameron St., Alexandria. Wednesdays, 10:00 - 11:30 a.m. For more information contact Anne Lipnick, 703-461-4188
Phone: 703-461-4188

Tourette Syndrome

Hampton Roads
Meets the 3rd Thursday of each month at Sentara Norfolk General Hospital, Jenkens Hall in Norfolk, VA at 7:00 p.m. Specific information about monthly programming can be found on the chapter website - www.tsagw.org or by calling the chapter office at 1-877-295-2148 toll free.
Phone: 877-295-2148
Phone: 877-295-2148
Northern Virginia
Meets the 3rd Wednesday of each month at Inova Fairfax Hospital, Falls Church, VA at 7:00 p.m. Specific information about monthly programming can be found on the chapter website - www.tsagw.org or by calling the chapter office at 301-681-4133.
Phone: 301-681-4133
Richmond
Group presently forming. Please contact the TSAGW office for more information at 1-877-295-2148 toll free.
Phone: 877-295-2148


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Copyright © 2009 PEATC - Parent Educational Advocacy Training Center. All rights reserved.

Content on this site was produced, in part, with grant funds from the U.S. Department of Education, under CFDA # 84.328M, #84.310A, and #84.235F. The content herein does not necessarily reflect the views of the Department of Education, any other agency of the U.S. government, or any other source.

PEATC is a 501(c)(3) non-profit committed to building positive futures for Virginia's children by working collaboratively with families, schools and communities in order to improve opportunities for excellence in education and success in school and community life. Our special focus is children with disabilities. You can reach PEATC by calling 703-923-0010 (Voice/TTY), or sending an e-mail to partners@peatc.org.

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